Jul 022017
 

Kara McClurken

Sunday Morning Wake-up Call host Sean McCord talks with Charlottesville resident Kara McClurken whose infant son was diagnosed four years ago with Spinal Muscular Atrophy.

SMA (spinal muscular atrophy) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. Since their son was diagnosed, Kara’s family has become active in the SMA community, advocating for early diagnosis, treatments, and additional research. More information about advancements in SMA support can be found at CureSMA.

The Sunday Morning Wake-up Call is heard on 94.7 WPVC the Progressive Voice of Charlottesville, Sundays from 11 a.m. to noon.

  One Response to “Wake-Up Call: Spinal Muscular Atrophy and One Charlottesville Family”

  1. Truly spoken from the heart and I can relate in so many ways. It is crazy exciting to now have treatment for our children… We love Dr. Scharf and her staff at UVA. Love getting to meet other families and yes seeing these children gain even the smallest amount of movement is heart warming. Glad to hear Bennett is doing so good. Hope we can all catch up again soon.

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